It was a rough one. I developed a very bad jaw pain today. I new it was coming. I could just feel it.
And I'm starting to feel the kind of tired that lets me know I may be hitting a FLARE UP. Lupus is so strange. You have periods of time...days, weeks or months that you feel pretty well. But then you hit what we call "Flare ups". That is when you remember you have Lupus. You become sick with all kinds of things. And it can last for months.
As the evening went on I have become extremely tired. VERY poor concentration and I'm getting rashes between my fingers, stomach and arms.
I am hoping it is a fluke. Sometimes that happens also.
This is where it gets scary. I need to watch for the next few days. It makes it hard to plan anything. It would to me, be very hard to have a job outside of the home. I wonder what working Lupus ppl' ...lol tell their bosses?
If I am in a flare you will even see a change in my blogs. More spelling problems and making sense.
I do not plan to correct any mistakes. I want ppl' to understand what we really get like when the illness gets bad. Now is the time I plan to blog more.
Now is the time where I plan my business activities differently. I will need to work on my Shabby chic collection ANY time I have energy. Soon I will be giving myself a deadline for my open house...and I will stick with it. I have so many lovely items I have made already. It would be a waste to give in and lay down.
There may be increased visits to the er (I should really just rent a room monthly from them...lol).
I will have to watch for signs of stroke, Kidney problems and many other fun stuff.......
and run a business and household at the same time.
Even if I am fatigued, I will be up most of the night. The pain is not going to let me rest. And now I have the added worry about how I will get everything finished for the open house. But I have enough to keep busy. I have a buffet to work on. It will be a pretty cream color, covered in roses. I have several dressers to complete also. Keeping my mind busy will keep me healthier. I have always believed that. So far it has been true. I love the work I do, so even under stress my life is good.
I have a full life. THAT is how one can combat this disease. There are few treatments (which are all about 40 years old), and there is no cure.So keeping busy IS my treatment. I have 3 daughters which I will blog about soon. And a wonderful husband who works hard at his business (Garage door installer), and even tired...takes excellent care of me and EVERYTHING else when I can't.
Well I'm off to my craft room. I need a few minutes to prepare. By this I mean...take pain medicine LOL!!!
I will be working on beautiful cottage and shabby Chic items through the night. I have added a new collection. It is seaside cottage...Many pretty light blues and greens.
Sleep well everyone. Pray I do not fall asleep in my paint bucket..lol
Anita your neighborhood Lupusoid

By: Anita At 07/24/2008 - 3:03am |  |  |